Game over - the final absurdity has come to pass

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SquidInk
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Game over - the final absurdity has come to pass

Post by SquidInk » 08-10-2010 04:07 PM

This really is similar to something out of the ancient world, isn't it? Somehow, the kings own everything. They even own your cells, and they'll charge you tens of thousands to harvest them, then sell them for millions without blinking an eye.

Tell me again what's so great about this world, and this absurd circus called "life"...
Who Owns This Body?

The symptoms crashed down like an avalanche, and John Moore didn't know what to think. Bruises all over his body, bleeding gums, and the roll of flesh around his waist that he'd always figured for fat had gotten lumpy and red and sore.

He didn't know much about cancer, but when he finally dragged himself to a doctor in Anchorage in the summer of 1976, he learned more than he wanted to know. For one thing, he learned that he had it. For another, he found out his type was rare, something called hairy-cell leukemia. The doctor said it was attacking his spleen, so instead of absorbing aging blood cells the way a normal spleen does, his spleen was absorbing all his blood cells, cannibalizing him, swelling up in his gut and smashing his other organs against the walls of his body. The doctor said there wasn't much hope, but Moore wanted to give it a fight. He found a specialist at UCLA and flew down for a consultation.

Right off the bat, he liked Dr. Golde, who made such a point of cutting through bull**** that he let his patients call him Goldie. Moore trusted that, and when Goldie suggested that he should have his spleen taken out, he didn't hesitate. The surgery took three hours. A normal spleen weighs about fourteen ounces. Moore's spleen weighed fourteen pounds.

Within a few weeks, he was back on his feet, ready for a fresh start, and Seattle seemed as good a place as any. He was just thirty at the time, broad and strong, and it wasn't long before he found a nice girl there, married her, bought a ranch near the coast, and got himself a job as a salesman in the oyster industry. He tried to forget about the leukemia, the bruises, the bleeding gums, the cannibal spleen. For the most part, he did. The only reminders were his follow-up visits to see Goldie. They seemed never to end.
...

Then, after seven years of regular visits, Goldie's nurse brought him a contract to sign. Moore looked at it awhile, trying to figure out what the hell it was. Something about surrendering "any and all rights." Moore didn't like the sound of that, so he circled the box that said, "DO NOT" consent and gave it back. But when Moore got home to Seattle, he found another copy of the contract in his mailbox. This time, it had a Post-it note attached, with an arrow pointing to the word "DO." He looked at the contract again. Again, it seemed strange. Again, he didn't sign it. A few weeks later, yet another contract arrived by mail. This time, there was a nasty letter attached, Goldie telling Moore to stop being obtuse and sign the damned thing. He didn't like Goldie's attitude. Something was fishy, and he decided to find out what. He sent the contract to a lawyer.
...

But when his case went before the California Supreme Court in July of 1990, the judges weren't impressed. As far as they were concerned, Moore didn't have any right to sue Goldie for stealing his cells because the cells didn't belong to Moore in the first place. They might have come from his body, and they might have contained his DNA, but that didn't mean they were his. On the contrary. According to the judges, Moore's cells couldn't belong to him because if they did belong to him, then Goldie couldn't have a patent on them. "Moore's allegations that he owns the cell line and the products derived from it are inconsistent with the patent," the majority wrote, adding that he "neither has title to the property, nor possession thereof" and concluding that "the patented cell line and the products derived from it cannot be Moore's property."
...

Like, for example, the gene called BRCA1. There's a chance you have that gene. There's an even better chance your wife has it, or your sister or your mom, because that's the gene for breast cancer. If you could test yourself for BRCA1 right now, or if you could test your wife or your sister or your mom, you probably would, right? Just to be on the safe side. But you can't test yourself because you don't know how, and your doctor can't test you because he's not allowed--at least, not without permission from the person who owns the gene. And that person isn't you. It might be in your body, but it doesn't belong to you. It belongs to a company called Myriad Genetics in Salt Lake City. So if you want to know whether you have the gene for breast cancer, you're going to have to call somebody for permission. Then you're going to have to pay for the cost of the doctor's visit, plus a ,500 fee to Myriad Genetics just to access its gene, the gene inside your body. Those are the rules of the patent game. That's what a patent means: exclusive access. And the last time somebody broke those rules, the last time somebody ran a test for BRCA1 without permission, Myriad Genetics went after them. And Myriad Genetics made them stop. And that was a university.
...

Not only was the U. S. Supreme Court overruling Congress with its verdict, it was also overruling the U. S. Constitution, which states that only Congress has the power to change patent laws, a detail noted by Justice Brennan in his dissent: "It is the role of Congress, not this Court, to broaden or narrow the reach of the patent laws," he wrote. "Congress specifically excluded bacteria from the coverage of the 1970 Act."

Still, the majority had ruled, and the GE patent became official...

much, much more...

- source
This nation now lacks the discipline, & the dignity to live up to it's "truth & justice" shtick. We opted instead for "legal & illegal" - not quite as noble, you must admit. So, this is what the meritorious legal class has come to over the decades - lawless chicanery, sold to the highest bidders.

Okay.

Like I said, when this type of "law" can exist; when people are willing to warp reality to this level, and do so with a full blessing from the supreme court system - it's game over, people. Somebody get the lights.

Seriously.

Game over.
Last edited by SquidInk on 08-10-2010 04:49 PM, edited 1 time in total.
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Post by kbot » 08-10-2010 06:07 PM

Damn that was good.......and scary as well. I think that one of the legal tenets that this hinges on (and I may be wrong, so if someone wants to correct me is fine) is that once you as a patient relinquish a body part, that body part is no longer "yours". Technically, it's trash, and hospitals have been figuring out howto get rid of body parts for a long time now. The contract, which is different than informed consent, was probably devloped after he fact as a cya for the doc because of the research he had bene condusintg using discarded body parts.

That's OK - today I was at a meeting with some guy from the corporate office and he just likened us to Target. Nice to know that this is the new perspective - our hospital group is being intentionally compared to a department store..........It is amazing how things change over time. If this view predominates, I feel very badly for the future of healthcare....:(
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Post by Live365 » 08-10-2010 06:18 PM

Thank you for this brilliant post, SquidInk. Let me argue it from the other side.

A year or so ago, CNN (or some other channel like that), came out with a report on HeLa cells. The (in)famous case of Helen Lang (turns out, that wasn’t her real name), who’s cervical cancer cells were taken and cultured without her consent. **In 1952**. Everyone went nuts, and our clinical research for better antibiotic treatment suffered for many weeks. Because patients had been made paranoid over this inflammatory claim. I have split so many flasks of HeLa cells I couldn’t count. And every single one, went for good purpose.

Cancer cells…don’t get me started! They grow like weeds. To the bane of us all. Yet, without research on them, no one would really know what was happening. Brilliant PhD’s are working on this problem. And you can’t believe what they have come up with! But they wouldn’t be able to work on anything, without the actual cells.

I have held HIV in my hand. It is a wonder of evolution. Today, it is a simple matter of drugs to control this virus. Would that have happened if young men had not given up their virus back in the day? *Their*, virus? How does anyone suppose this research happened?!

I could get started on bacteria and ESBL’s, but that’s when I start going on forever. Allow me to just say that I am bound by HIPAA and regulation every day of my working life, and NO ONE takes it lightly. Violate HIPAA and regulation, and yer out of a job. Just so you know!!

Thanks again fer this post, SquidInk. I hope it generates discussion.
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Post by kbot » 08-10-2010 07:46 PM

Live365 wrote:
I could get started on bacteria and ESBL’s, but that’s when I start going on forever. Allow me to just say that I am bound by HIPAA and regulation every day of my working life, and NO ONE takes it lightly. Violate HIPAA and regulation, and yer out of a job. Just so you know!!


I hate HIPPA.............it's getting to the point that you can't even do your job anymore because someone's afraid that you're going to blare their information from the mountaintop. On the other hand, yesterday we had a news report of a local pharmacy who somehow "lost in the mail" a CD containing patient account information. When I first started working in radiology back in the 70s, we were still hand-processing films. Today we have digital and computerized radiography, CT, MR, electronic medical records and so forth - all living in a digital environment. The potential for mistakes and abuses in the system are astounding - more so that a few years back with the old analog system. And now, add incidents such as this where patient information is literally flowing around the world and it's a disaster waiting to happen......:rolleyes:

http://www.heraldnews.com/news/x1869746 ... tity-theft
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Post by Live365 » 08-10-2010 07:57 PM

kbot wrote: That's OK - today I was at a meeting with some guy from the corporate office and he just likened us to Target. Nice to know that this is the new perspective - our hospital group is being intentionally compared to a department store..........It is amazing how things change over time. If this view predominates, I feel very badly for the future of healthcare....:(


Kbot, I think we posted over each other. Please elaborate.

Though I'm nt sure I want to hear it...:mad: :mad:
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Post by SquidInk » 08-11-2010 01:08 PM

Thanks for the input, Live & Kbot... great posts.

I see that are both of you are in a position to address the details of the situation, but let's not forget the bigger picture - right?

In my opinion this is a treacherous monopoly to end all treacherous monopolies. Jefferson railed against this type of abuse back in the beginning of time. I know - Jefferson was a fool & a dreamer, and we discarded his vision for good in the Marshall years. But even so, this is so completely egregious it makes us look back to those who had the tenacity to dream of something better... no?

Furthermore, no patient will "discard" a portion of her/his genetic material if made aware of a potential million dollar payoff. The practitioners are essentially swindling their clients by first charging sky high rates (to the point of bankruptcy) to remove the material, & then monetizing the "discarded" material without the patient's knowledge. The fact that a release was requested tells me that the patient does retain some interest in the materials.

But we can trust our legal system to come out in full support of the corporate monetizers - every time.

It's very disenchanting to learn that the eventual motivation for the mapping of the human genome was not to enrich mankind, but to enrich the few souls with the resources to discover & patent these genes. But this has always been our system. The difference today can be found in the attitude of the people.

Today, anything goes. Nothing is bigger than the corporation - not neighbors, not families, not country - and certainly not any kind of "God". That is an new American attitude, one that has lead directly to the rise of our traditional competitors, and one that will eventually result in our demise.

It is obvious to anyone with a soul that to patent these genes, cures, and procedures, and to charge people for accessing them in times of need is an outrage against humanity. It's legal, but it's completely wrong. If we would have simply listened to Jefferson (and Ben Franklin, as well) we would have avoided much pain & ignoble behavior.

Possibly related:

Alternative Business Model

DIYbio & Emerging "Wetware" Hackers

Monsanto Files for patent on new Invention: The Pig.. - and they have made much progress since '05... google it if you care to.
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Post by SquidInk » 08-11-2010 04:15 PM

Live365 wrote:

I have held HIV in my hand. It is a wonder of evolution. Today, it is a simple matter of drugs to control this virus. Would that have happened if young men had not given up their virus back in the day? *Their*, virus? How does anyone suppose this research happened?!

Thanks again fer this post, SquidInk. I hope it generates discussion.


Live365: You are welcome!

I say a virus doesn't belong to the host anymore than a corporation who identifies it.

Patents were meant to protect "inventions", not "discoveries". And Franklin never sought compensation for his, he thought all should be freely given.

You see folks, the inconvenient truth is that a certain faction of the founding philosophies of this nation were nothing less than... open source. But they were shouted down by louder voices, and now we have arrived at the logical end point of those competing founding philosophies.

In other words, we did not choose wisely in the beginning, and we ignored several repeated warnings over the last several hundred years, issued by a sprinkling of truly luminous leaders.
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Post by kbot » 08-11-2010 07:00 PM

Live365 wrote: Kbot, I think we posted over each other. Please elaborate.

Though I'm nt sure I want to hear it...:mad: :mad:


You probably don't.

I was in a meeting with some guy from our corporate office, and he was explaining how they were attempting to standardize things acros the system, currently six hospitals. We were recently bought out by an investment group, with no healthcare experience at all. Eventually they are looking to expand out to forty hospitals across the country, and in the process, standardize processes among all the facilities. That's fine to an extent, but when you get down to practices and patient mix, some areas just defy standardization. Our patient mix and health concerns here in New England may not match-up well with patients say, in Mississippi, or Oklahoma or West Virginia for a number of reasons - diet, pre-existing conditions, ethnic background and so forth. But this guy was telling us that what goes in one facility should also apply at another, no matter where.........and he was using Target as an example. I think the wheels are coming off.
There you go man, keep as cool as you can. Face piles and piles of trials with smiles. It riles them to believe that you perceive the web they weave. And keep on thinking free. (Moody Blues)

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Post by SquidInk » 02-27-2012 06:12 PM

http://thenextweb.com/google/2012/02/27 ... ed-system/
You can barely hear the birds chirping in this YouTube video of a man picking some fresh ingredients for a wild salad, and yet that very sound has been identified as copyrighted material, belonging to music company, Rumblefish.

[...]

“I make nature videos for my YouTube channel, generally in remote wilderness away from any possible source of music. And I purposely avoid using a soundtrack in my videos because of all the horror stories I hear about Rumblefish filing claims against public domain music. But when uploading my latest video, YouTube informed me that I was using Rumblefish’s copyrighted content, and so ads would be placed on my video, with the proceeds going to said company. This baffled me. I disputed their claim with YouTube’s system — and Rumblefish refuted my dispute, and asserted that: ‘All content owners have reviewed your video and confirmed their claims to some or all of its content: Entity: rumblefish; Content Type: Musical Composition.’ So I asked some questions, and it appears that the birds singing in the background of my video are Rumblefish’s exclusive intellectual property.”
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Post by Fan » 02-28-2012 11:49 AM



HAH! I am boycotting all these systems. It is easy to make your own video sharing site and no one will take you down or leave nasty comments :)

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